{"id":29766,"date":"2021-03-15T15:45:53","date_gmt":"2021-03-15T06:45:53","guid":{"rendered":"https:\/\/www.theguardian.com\/global-development\/2021\/mar\/15\/what-price-a-childs-life-indias-quest-to-make-rare-disease-drugs-affordable"},"modified":"2021-03-15T15:45:53","modified_gmt":"2021-03-15T06:45:53","slug":"what-price-a-childs-life-indias-quest-to-make-rare-disease-drugs-affordable","status":"publish","type":"post","link":"https:\/\/eastasianews.net\/wp\/?p=29766","title":{"rendered":"What price a child&#8217;s life? India&#8217;s quest to make rare disease drugs affordable"},"content":{"rendered":"<p>Parents whose only hope was finding foreign sponsorship or a clinical trial are now looking for homegrown breakthroughs<\/p>\n<p>For three years, Vidya tried to find the cause of her son\u2019s recurrent fevers and low cognitive development. When she found out, she was devastated.<\/p>\n<p>Vineeth, 10, has an incurable illness \u2013 mucopolysaccharidosis type 2 \u2013 that affects his organs. Afflicting just one in a million, the enzyme-replacement medication that can help stop the illness getting any worse costs \u00a3100,000 a year, far beyond the reach of even a wealthier Indian parent.<\/p>\n<p> <a href=\"https:\/\/www.theguardian.com\/global-development\/2021\/mar\/15\/what-price-a-childs-life-indias-quest-to-make-rare-disease-drugs-affordable\">Continue reading&#8230;<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Parents whose only hope was finding foreign sponsorship or a clinical trial are now looking for homegrown breakthroughsFor three years, Vidya tried to find the cause of her son\u2019s recurrent fevers and low cognitive development. When she found out, she w&#8230;<\/p>\n","protected":false},"author":1528,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"sns_share_botton_hide":"","vkExUnit_sns_title":"","_vk_print_noindex":"","sitemap_hide":"","_veu_custom_css":"","veu_display_promotion_alert":"","vkexunit_cta_each_option":"","footnotes":""},"categories":[918,6,1991,1992,59,566,346,62,512,647,299,79,61,42],"tags":[],"class_list":["post-29766","post","type-post","status-publish","format-standard","hentry","category-biology","category-business","category-childrens-health","category-genetics","category-global-development","category-global-health","category-health","category-india","category-medical-research","category-pharmaceuticals-industry","category-science","category-society","category-south-and-central-asia","category-world-news"],"aioseo_notices":[],"veu_head_title_object":{"title":"","add_site_title":""},"_links":{"self":[{"href":"https:\/\/eastasianews.net\/wp\/index.php?rest_route=\/wp\/v2\/posts\/29766","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/eastasianews.net\/wp\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/eastasianews.net\/wp\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/eastasianews.net\/wp\/index.php?rest_route=\/wp\/v2\/users\/1528"}],"replies":[{"embeddable":true,"href":"https:\/\/eastasianews.net\/wp\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=29766"}],"version-history":[{"count":1,"href":"https:\/\/eastasianews.net\/wp\/index.php?rest_route=\/wp\/v2\/posts\/29766\/revisions"}],"predecessor-version":[{"id":29767,"href":"https:\/\/eastasianews.net\/wp\/index.php?rest_route=\/wp\/v2\/posts\/29766\/revisions\/29767"}],"wp:attachment":[{"href":"https:\/\/eastasianews.net\/wp\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=29766"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/eastasianews.net\/wp\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=29766"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/eastasianews.net\/wp\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=29766"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}